My child Nevaeh waas born with bilateral Pffd and I found out about her when i was 5 mths pregnant shes only 1 years old and I go threw alot with her. She was suppose to go threw a symes amputation in December but I canceled it because I felt emotionally not ready for me and her. Nevaeh moves around the house so good but my only problem is her club left foot bending so bad. Shes a darling little black girl with a big heart and always smiling, I dont know if her symes surgery will slow her down or make her progress better.
Hi, I am the father of a wonderful 4 year old. He has a diference of 6cm .he is due to go for his first surgery next tuesday. we pray everything goes well. Till about 4 months ago we attended regular physio .it was not really doing a lot for our son, so we went to our local herbalist . they gave our son a course of herbs and started a course of muscular repatterning.
My daughter, Eva, just had the super hip surgery on January 16th at Mount Sinai Hospital in Baltimore. Dr. Paley performed the surgery and, though it was an agonizing 9 hour surgery, it was a success and her hip looks perfect. She has been in a spica cast for 11 days now and we have had no problems with soiling of the diaper (knock on wood). So, I thought I should share my diapering technique for those of you who are going to be going through this.
I am 54 years old and didn't even know what I had until I was 42. I still don't understand some of the terms used here. My right toes were amputated when I was 11, and upon healing was fitted with a Canadian ???????? prosthesis. Now that my one good knee is shot, hips hurt, and general mailaise has set in; is there anything you people can teach an old dog? How about groups in the Indianapolis area?
ps, I always wondered if my condition was partially why I have a foot fetish?
My wife (Deb) & I were told today that our unborn child has PFFD (due date is May 15, 2008). So far we know it's baby's right femur but don't know the classification yet. This website has been an outstanding source of information & everyone is so friendly + helpful.
I'm sixteen and i've been wearing a shoe lift for about fifteen years. Last year, i had a extension prosthesis made. For a reason, i feel like people are still looking at me. I really don't want people to think that i want to do this because i want to be normal. I just want to feel confident about myself, it's hard in your teen years. I know amputation isn't a easy decision or a easy process, but i just want to explore the options i would've taken or I could take. I know a little bit about the Symes Amputation. More so the appearence of the prosthesis.
I have a bag full of girl's shoes sizes 5 and 6 with 7cm lift (approx 3 in) on the right shoe. I will send them to anyone that can use them at no cost. The lifts can always be cut or added onto. Let me know if you want them. You can send me a private message. I have a lot of pairs!
