PFFD VSG2

I was born into this world with PFFD. I am unilateral and an above the knee left leg amputee. I was walking by 14 months in a prosthesis with out a knee, and then later I upgraded until I am now at the highest rated knee due to my athletics and busy life. I was very lucky because my parents treated my amputation and never made it seem as though I were any different. My dad pushed me into sports to keep my head above water, and to not think any differently about my situation.

Kiara Had a lenghtening surgery on March 31st, 2006, she had 11 pins put in her right leg and I lenghtened her leg 8 cm wich was the max we could do!

I believe I may be the oldest PFFD and that most of the original work was done on me at the Children’s Hospital , Boston (Brookline), MA (now known as the Children’s Medical Center) under Dr William T Green who was Chief Orthopedic Surgeon of the Children’s Hospital and full professor in Orthopedic surgery at Harvard Medical School. His pup and protégé was Dr David Grice.

I was diagnosed (in 1931) as, in those days, a Congenital Absence of the proximal 2/3 of the femur and acetabulum, acute (today known as a PFFD). There was a girl with a similar diagnosis but she died at age 12.

This is my first time with a blog so please take it easy on me if ya all could. I was looking for information if any one has had or is having back problems due to their disability and also if anyone’s fathers had been in the Viet Nam conflict. My dad has TypeII diabetes from Agent Orange exposure and from what I can find it looks like dioxin in the herbicide can cause a ton of birth problems. Thanks for any information and taking it easy on a new guy.
Thanks
Jeff

Hello there, my name is Patrick Stewart and I have upper PFFD. I know that the condition is not genetic since no one else in my family has ever been diagnosed. Recently though, I have discovered that my girlfriend is now 8 weeks pregnant and I am extremely concerned that this will be passed on to my now unborn child. Please someone let me know your thoughts and feelings. If anyone is out there with PFFD and has had a child, PLEASE let me know if they were born with or with out our condition.

I started this Internet search in hopes of finding other parents like myself to learn of ways to help support my son. Turner is my first child, and his PFFD was a complete surprise. He was 2 weeks early, born 2 days before Christmas 2003, beautiful, and otherwise healthy. His condition was so sever that he was born with only a small footpad and two toes. He saw many doctors while in the hospital and no one could tell my why or what was wrong with my son. My father-in-law is a member of the Masons and immediately went to work setting us up with Shriners.

Hi,
I'm just curious to see what those who have had the rotation plasty done think about it. I'm sixteen, and we've run into several complications, and I'm now leaning towards the procedure. So what's it like? Do you limp very much? How active can you be? What do other people think? Can it get painful? What's it like to have to wear a prosthetic every day? Any insight you can give me into your condition of living would be HIGHLY appreciated. Thank You.
-Zach

Hello everyone, I really would like to thank all of you for the advice. Since the last time I was on here, we have seen several specialist, the last place we went was to Shriners in Shreveport, La. everyone is basically telling us the same thing, that amputation would be best for her. they fitted her with a shoe and a lift which is working great right now. but I know that we will have to make a decision for her soon. We have talked to several families that have had the amputation done and they seem to be very happy with their decisions. I am just not very sure...