My son is 32 years old and wears a Foot in Foot Prosthesis. He had a lenghting (with Dr. Paley) when he was 16, however, he still needs about 5 inchs. He does not want to do the lenghting again and having alot of pain walking. We are looking for a doctor in the Lehigh Valley Pa area that we can see to discuss the Syme's Amputation. We have seen several however, they do not seem to want to discuss this. Maybe because of all the surgerys. I don't know. He is working but is afraid if he does not get some help with the pain, he will have to stop.
Just a quick note - the next online discussions with the doctors from the International Center for Limb Lengthening will be on Thursday November 12 and Thursday December 10 at 9:15 PM EST. Please contact vbrady AT lifebridgehealth.org for additional information. This is a good place to not only ask the doctor, but also other parents who have been-there-done-that.
Date : Thursday October 22
Time: 9:15 PM EDT (Note that this is the time zone for Baltimore, MD or Washington, DC)
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email a few days prior to the chat if you don't already have it
Date : Thursday September24
Time: 9:15 PM EDT (Note that this is the time zone for Baltimore, MD or Washington, DC)
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email a few days prior to the chat if you don't already have it
I am a long standing patient of Dr Paley. I took a break after highschool to get college done with before we finish the lengthening and hip and knee replacement. I am looking for information about the procedure, surgery, and recovery of the hip and knee. Also the few I have read on here talk about a spika cast. Is this always the case? Thanks!
Whenever I talk to people about my daughter's condition (unilateral PFFD), they ask if I know how many people are affected with this since it is something they have never heard of before. Does anyone have any statistics on the percent of the population that has PFFD or other similar stats? I know I saw them somewhere months ago when we first learned of our daughter's condition, but I can't seem to find them now. Thanks!
What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting an online chat.
Date : Wednesday, August 26
Time: 9:30 PM EDT
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email prior to the chat
You must also register with Chatzy in order to verify your email address.
Sami is starting Kdg. on Thurs. She is SO excited!! So far, Sami hasn't had any issues what so ever about making friends. However, lately, she has been more aware of people staring and...at times...can be a bit, well, let's just say, a little annoyed about it. Other times, she just gives a full medical run-down and explains that all this makes her more special.
What I am debating is taking to the class??? Do I go ahead and talk to them (with or without Sami there), do I wait and see if it's needed? And, what do I say?? Any advice from those of you who have been there??
So my problem is I have a 4 year old that is not potty trained because she does not want to undo her belt. She goes tomorrow to get a new leg without a belt. When she does not have her current leg on she will go to the bathroom occassionally. I have tried several things to get her to go such as time out(cause she knows when she has to go she just refuses) and taking toys. Can anyone offer me some help. I am desperate.
Reading through some threads recently, I notice that several of us started out with 4 toes on our PFFD leg(s). When I was in kindergarten we all took off our shoes and counted our fingers and toes. The oject of the excersize of course was to get to 20, but I was the only kid that came up with 19. It absolutely blew my teachers mind, and turned me into a bit of a superstar at recess. Has anyone else had a similar, or amusing experience like this?
