Hi everyone. I know that there have been posts before regarding bikes. Sami is 5 and would love to get a bike. Does anybody have any pictures of their adapted bikes or advice on what you've tried? Sami is Unilateral affecting her left side. She's been able to ride her tricycle by using only her long leg.
The last one was so well received that we are doing another Limb Length Discrepancy chat.
What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting an online chat. Date : Thursday July 30
Time: 9 PM EDT
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email
You must also register with Chatzy in order to verify your email address.
This is for parents of children with various types of limb length discrepancies, not just PFFD/CFD.
Hi all
I would appreciate any feedback on the following:
My daughter (almost 4 yrs) had her second super - hip op in Feb this year. Her spica has been off for 2 months, but still does not want to walk more than is absolutely necessary, and then only with assistance of her walker. (she wears a 10cm lift) She complains of pain, especially in her shins/calves and where the pin is in her hip?? Our doctors tell us to be patient - but with the previous super hip op she was only able to walk properly after they removed the bent pin in her hip.
Just a quick note to let you know that there will be an online chat this Thursday.
What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting our second chat. For those who missed the last one, this is a real time chat where you can ask Dr. Standard questions about treatment of limb length discrepancies in children.
Date : Thursday June 25
Time: 9 PM EDT (Note that this is the time zone for Baltimore, MD or Washington, DC)
Place: http://www.chatzy.com/600868137410
Temporary password: lldkidstest
Does anyone have any advice, how to choose a doctor, specific considerations, etc. for amputating an affected PFFD leg? I'd also be interested in any recommendations for doctors to perform the surgery.
To all parents or person's dealing with PFFD or bone defect, I suggest contacting Dr. Paley.
We had our visit yesterday and it was wonderful. Justin's 1st surgery is on as scheduled but we learned more from that visit than all the other Dr.s and Hospitals we have gone to.
We have a wonderful, active 17 year old boy with pffd, no prior surgeries. Whom has a consultation with Dr. Paley on June 8, 2009.
And first surgery scheduled for August 6, 2009 for Super hip and knee.
Any advise or information would be greatly appreciated.
This will be done at St. Mary's in West Palm Beach.
My daughter who is now 8 yrs old also had billateral PFFD. We are interested in joining everyone for a retreat. We would love to gain some friendship and help each other. I understand MN is an optional for the retreat site. If the retreat is planned, we will join. I also want to put it out there for anyone who lives closer to Ohio and the surrounding states that can't travel to MN, maybe we could set up another retreat for those who can't make the MN trip. We live in KY.
Has anyone found any children's books about kids with limb differences or prosthetic legs? Do you know of any biographies of someone who has overcome limb loss or differences? Just looking for stories to share with my daughter as she gets older. Thanks!
